NATF is dedicated to providing you with the information you need to live your best life after experiencing a blood clot. From videos with experts addressing patient questions, to printable materials, risk assessment tools, and further resources, these are tools that you can use to empower yourself to make informed healthcare decisions.
Articles and Info Guides
Creating accurate and helpful educational materials is a key part of NATF’s mission to help you better understand your journey with blood clots. Below, you will find helpful handouts and pamphlets, as well as our bi-monthly newsletter, The Beat. NATF also offers a special tool designed to help you assess your risk of developing a blood clot.
Printouts of these materials can be ordered online by emailing firstname.lastname@example.org.
Risk Assessment Tool
What is your risk level for developing a blood clot?
NATF developed this risk assessment tool to help patients determine their risk for a blood clot. It was developed originally for healthcare professionals, but is a great tool for patients to assess their own risk as well.
Start by clicking the Main Menu link on the image below.
Here are several videos to jump-start your journey with blood clots. For more, visit the NATF YouTube Channel.
Lifestyle Modifications to Prevent Thrombosis
A healthy lifestyle can make all the difference. Dr. Samuel Goldhaber discusses the lifestyle modifications that patients can make to help prevent blood clots:
Shared Decision Making
Shared decision making is a method that patients can use to gain more control over their care. Dr. Geoffrey D. Barnes speaks to patients about what shared decision making is and how it works:
The Genetics of Thrombosis
Dr. Umberto Campia discusses the role that genetics can play in blood clots and why certain patients should consider genetic testing:
After experiencing deep vein thromosis (DVT), some patients develop post-thrombotic syndrome (PTS). Dr. Susan Khan presents on this under-acknowledged issue:
In addition to the resources that NATF provides, it is important to know about other organizations and community resources that are available to you. Take a look at these organizations here to support you:
- American Heart Association (AHA)
Mission: To build healthier lives, free of cardiovascular diseases and stroke.
Primary Focus: Cardiovascular healthcare professional and patient education, Advocacy, Research
- American Society of Hematology (ASH)
Mission: To further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunological, hemostatic and vascular systems, by promoting research, clinical care, education, training, and advocacy in hematology.
Primary Focus: Hematology education and advocacy
- American Thrombosis & Hemostasis Network (ATHN)
Mission: To reduce and provide stewardship of a secure national database, adherent to all privacy guidelines, which will be used to support clinical outcomes analysis, research, advocacy, and public health, reporting in the hemostasis and thrombosis community.
Primary Focus: Hemostasis and thrombosis data and analysis
Mission: To help others improve lives by providing both patients and healthcare providers with the most up-to-date information and expert insight on optimal use of antithrombotic and anticoagulant therapy. In achieving this end, ClotCare seeks to be the premier source to which patients and clinicians turn to get information on these therapies used to prevent and/or treat unwanted blood clots that cause heart attacks, strokes, and other potentially catastrophic events.
Primary Focus: DVT Patient and Healthcare professional information and resources
- Covidien: 1 in 1,000
Campaign Mission: To educate healthcare professionals and the public about the risks of VTE in pregnant women.
A place for facts and information about Chronic Thromboembolic Pulmonary Hypertension (CTEPH)
- Georgia Thrombosis Forum
NATF works with the Georgia Thrombosis Forum to promote the education of young middle school and high school students, teaching them about thrombosis and how they can spread awareness in their communities. Each summer, NATF hosts a high school intern from the group. Each intern has the opportunity to work alongside doctors and patients to enhance their knowledge of thrombosis and raising awareness. In addition, the students conduct research and publish it in GTF’s eThrombosis Online Journal.See eThrombosis Here
The Georgia Thrombosis Forum (GTF) is a community service organization dedicated to spreading awareness about thrombosis in Georgia. GTF is an affiliate of NATF, and was founded after a 14-year-old boy in Georgia suffered from two episodes of massive bilateral pulmonary embolism in 2011. This event was alarming to the local community, especially because many community members had little or no knowledge about deep vein thrombosis and pulmonary embolism.A group of volunteers made up of parents, students, patients, and doctors came together and formed the Georgia Thrombosis Forum on December 12, 2012. Today, the GTF comprises of over 48 volunteers and continues to raise awareness throughout the State of Georgia as it works to enhance the mission of NATF.