You are not alone.

After experiencing a blood clot, it’s normal to have a lot of questions. Many people are left feeling confused about why this happened to them and are anxious about it happening again. Illness-focused support groups can be very beneficial to patients. NATF’s Blood Clot support groups allow patients to:

  • Find accurate information about blood clots
  • Learn about current research from an expert
  • Share first-hand experiences with other patients
  • Help one another cope with the physical and psychological challenges of a clot

We’re proud to offer support groups in:

  • Boston, MA
  • Chicago, IL
  • New York City, NY

Boston

Support Group meetings begin at 7:00 pm EST, and are held at the Brigham and Women’s Hospital in Boston on the 5th floor of the Shapiro building. Support groups are open-enrollment. To register, please email us at events@natfonline.org.

Upcoming Boston Support Group Meetings

  • May 21, 2020
  • September 22, 2020
  • October 13, 2020
  • November 19, 2020
  • December 17, 2020

New York City, NY

Let’s Heal Together – A Post-Thrombotic Limb Support Group is a newly formed monthly support group for NYC-based patients, family members, and caregivers affected by post-thrombotic syndrome.  If you’ve suffered from a deep vein thrombosis and your leg has just never felt the same, join this support group.

Upcoming New York City Support Meetings

  • Check back for another date soon!

Meetings will take place at NYU Langone Health in New York City at 660 First Avenue on the 3rd floor in the small conference room.

For more information and to register, please email Heather Paulson-Soussou at hpaulsonnyc@optimum.net


Chicago

Drs. Joseph Caprini and Alfonso Tafur of NorthShore University HealthSystem host a DVT & PE Support Group in Chicago, IL.

Upcoming Chicago Support Group Meetings

  • Stay tuned for the next meeting date

Register for more information here

Each meeting starts with a meet-and-greet for the first half-hour, during which time attendees can visit the compression and Coumadin corners. Then we have a short 20-minute presentation on a pertinent topic such as:

  1. Genetic blood disorders
  2. DVT/PE risk factors
  3. DVT/PE prevention
  4. DVT/PE symptoms
  5. Life changes after a DVT/PE

The meeting features an anticoagulation clinic corner staffed by pharmacists from the three anticoagulation clinics at NorthShore University HealthSystem. Attendees can visit the clinic corner and get information on anticoagulant drugs, particularly Coumadin.

There’s also a stocking/compression corner featuring expert fitters, to answer questions and concerns as well as demonstrate a variety of products that can be helpful for patients with leg swelling, blood clots, and the ever-popular travel-related stockings.


Interested in starting a Blood Clot Support Group? NATF can help

NATF is looking for patients, physicians, nurses, pharmacists, or family members to help start support groups across North America.

With short appointment times, it can be difficult for patients to get support and the answers they need to understand and process their diagnosis. Patients that supplement appointments with a support group feel more confident, more knowledgeable, and more hopeful about their diagnosis.

If you’re interested in starting your own Blood Clot Support Group, contact us at events@natfonline.org or at 617-730-4120.


History of NATF’s Blood Clot In-Person Support Groups

Mark Lindsay discusses the impact that NATF’s In-Person Blood Clot Support Group has had on his recovery.

For 24 years Dr. Samuel Z. Goldhaber (NATF President) and Ruth Morrison, RN, BSN have held a monthly venous thromboembolism (VTE) support group at Brigham and Women’s Hospital. A typical meeting has between 10-15 patient attendees. Our attendees represent all stages of recovery: some have suffered a thromboembolic event decades ago and enjoy coming to the meeting to learn new information and lend support to other patients; others are newly diagnosed and still overwhelmed with their diagnosis and the onslaught of new information. We’ve enjoyed a diverse mix of both men and women and young and elderly patients (ages range from 17 to well into the 80s). The feedback we receive from our attendees is that the support group has been invaluable to their recovery, both physically and mentally:

  • “Having a doctor explain the new drugs on the market in a way I can easily understand has helped me to have discussions with my doctor about the best treatment for me.”
  • “Knowing that life goes on pretty much as before for the vast majority of patients with only minimal daily inconveniences is comforting.”
  • “I like hearing about the current status of research in this area.”
  • “It was extremely beneficial for me to hear that others had similar fears that I had. Just being able to express these fears and feelings to others was a tremendous help to me.”

Ask The Expert: An Open Forum

Ask the Expert (ATE) is a live quarterly forum where you can ask questions about blood clots and heart health. Through ATE, we hope to more directly connect patients, caregivers, and families with leaders in the thrombosis field. This forum will take the place of our monthly online support group sessions. You can find recordings from past support groups below. To register for Ask The Expert, click on the date below.

Upcoming Ask The Expert Forum


Past Online Support Group Meetings:

You can still watch recordings of our past online support groups by clicking on the links below:


Patient Pulse: Blood Clot Education Series

In early 2020, we replaced our live online support groups with on-demand educational webinars. This new format allows patients, caregivers, and families to access up-to-date information on thrombosis whenever and wherever! You can find recordings for the Patient Pulse here.